Virtual Washington Days

NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. In 2020, Washington Days had more than 450 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and access to skilled nursing facilities (SNFs). […]

Virtual Albany Days

Join the New York State Bleeding Disorders Coalition for Virtual Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are encouraged to participate in this legislative day. This will take place from Sunday, March 21 to Tuesday, March 23. During a pre-meeting […]

Virtual READY Teen Retreat

The Virtual Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the opportunity to use these skills at the State level. This will take place on Saturday, March 20 before taking part in Virtual Albany Days from Sunday, […]

Education Day

Join us on Sunday, November 21, 2021 from 10 AM to 1:30 PM for our Virtual Education Day! This annual event is our largest event of the year and is intended to bring the entire Greater NYC bleeding disorder community together in one virtual setting to connect, learn, and support one another. Even in a virtual setting, […]

Virtual Washington Days 2022

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability […]

Albany Days

Join the New York State Bleeding Disorders Coalition for Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are encouraged to participate in this legislative day. This will take place from Saturday, March 26 to Monday, March 28. Due to COVID-19, attendance is limited. If […]

Washington Days

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. Each year, roughly 400 volunteer advocates from 45 states come together to meet with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage […]

Albany Days

Join the New York State Bleeding Disorders Coalition for Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are encouraged to participate in this legislative day. This will take place from Saturday, March 18 to Monday, March 20. Apply Here

Albany Days

Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 16 to Monday, March 18. Whether you are new to advocacy, or you're an experienced advocate, you can help us make a difference! This three-day program will feature a fun and interactive advocacy training on Saturday and Sunday followed by meetings […]

Community Conversations: Navigating Childhood with Bleeding Disorders

Join us on Thursday, March 21 at 7 PM for a webinar focusing on guiding your child through the early years of life with a bleeding disorder with an emphasis on the mental health related aspects that come along with a new diagnosis. Dr. Regina Legere-Buccellato, a Clinical Psychologist and mom of two sons with […]

Start typing and press Enter to search